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Meet the expert webinar

Uncovering New Rare Disease Patients Using Structured and Unstructured Real-World Data

Webinar available on May 8, 2025 | 1:00pm EDT

Without structured real-world data (RWD) that can reliably indicate disease presence, it’s difficult for pharma companies to accurately discern rare disease patient populations and commercialize therapies to serve them. MMIT, using NorstellaLinQ, pharma’s first fully linked and integrated data asset, helped solve this challenge by integrating U.S. open claims, closed claims, labs, and unstructured EMR clinical notes.

21
Days
01
Hours
57
Minutes
46
Seconds

In this webinar, we’ll explain how MMIT, with NorstellaLinQ, developed a robust, unified dataset to provide comprehensive insights into a rare disease population.

You will learn how NorstellaLinQ enabled MMIT to:

  • Quantify a rare disease population
  • Build commercial, payer, and education targeting strategies
  • Create a robust HEOR story to share with payers

Register to Access the Webinar


Team #4
webinar-author-allison-perry

Allison Perry

Director of RWD Engagement Management | Norstella

Allison Perry is a director of RWD engagement management at Norstella. She serves as a strategic thought partner to life sciences companies, helping them realize and leverage the full value of Norstella’s real-world data across commercial, medical affairs, HEOR, and regulatory use cases. As a PhD-trained epidemiologist, Allison brings years of experience leading real-world data strategy and research across contract research organizations, data vendors, and pharmaceutical companies.

webinar-author-shrinal-patel

Dr. Shrinal Patel

VP, Health Informatics, RWD | Norstella

Dr. Shrinal Patel is the VP, health informatics on Norstella’s RWD team, leveraging her extensive knowledge in clinical data and trial optimization. Before this, she was a medical director, where she further honed her leadership and clinical expertise. She is a certified clinical research professional with extensive experience across various roles and organizations. She has served as a clinical operations manager, driving recruitment strategies using real-world data, conducting site training, and enhancing communications with healthcare professionals. She has also managed study enrollment, coordinated activities for compliance, and facilitated communication between physicians and life science companies.